Spina bifida facts

According to the Spina Bifida Association of America more children are born with spina bifida than muscular dystrophy, multiple sclerosis and cystic fibrosis combined.

Spina Bifida occurs in 7 out of every 10,000 live births in the United States. Spina Bifida is considered to be underreported on birth certificates so the drop in the rate could be due to lack of reporting, not an actual decrease in occurrence. In addition, a number of Spina Bifida pregnancies are voluntarily terminated and thus can't be determined how many pregnancies are terminated versus carried to term.

Facts about Neural Tube Defects

INDIANA RESOURCES

Family Voices

IN*Source

Indiana State Resources

SBA Central IN

Toll Free Resource Guide

Official ADA Site

Spina Bifida Assoc. of America

Human Rights

Elkhart SB Chapter

indiana parents-imp. issues!

"Families Helping Families"

We are located in North Central Indiana and are here to assist families in providing on-going emotional support, provide practical information and education to families that are raising a child or children with spina bifida. We as parents can utilize our experiences to benefit other families and we can also individually learn how we can better assist our children in their daily lives and prepare them for the future.

In addition, if you are an adult that is living with spina bifida you are welcome to this group as well. There is much we can learn from adults and I believe that you also will gain support from others here!

Social Skills Development in Children w/SB

IEP Skills for Parents

Disability Types for Public Schools

The Learning Disabled Child and the Home

ADA Facts

Nonverbal Learning Disorder Syndrome

Learning Problems & The Central Nervous ++System in Children with Spina Bifida

Impaired Motor Learning in Children with ++Hydrocephalus

Neuropsychology and School

Durable Power of Attorney

Bullying: How To STOMP It Out!

Spina Bifida Chapters

Cognitive Status of Young Adults with Spina ----Bifida

Ten Commandments for Parents of 000Handicapped Children

Food For Thought:

2 COR. 12:8-9 "THREE TIMES I PLEADED WITH THE LORD TO TAKE IT AWAY FROM ME. BUT HE SAID TO ME, "MY GRACE IS SUFFICIENT FOR YOU, FOR MY POWER IS MADE PERFECT IN WEAKNESS". THEREFORE, I WILL BOAST ALL THE MORE GLADLY ABOUT MY WEAKNESSES, SO THAT CHRIST'S POWER MAY REST ON ME."

JOHN 9:3 "NEITHER THIS MAN NOR HIS PARENTS SINNED", SAID JESUS, "BUT THIS HAPPENED SO THAT THE WORK OF GOD MIGHT BE DISPLAYED IN HIS LIFE".