We were blessed with a son named Thomas. He was born full
term after I had a great pregnancy. In the operating room,
when he was born it was discovered he had spina bifida. What
started out as shock and heart break, has blossomed into an
incredible experience. We have met some true heroes and
believe we have a little hero living with us. Thomas stayed
in the NICU after birth for only seven days. We returned
when he was three weeks old to have a shunt placed.
Thomas now is mobile in a manual wheelchair. Walks with
AFO's about six feet in a set of parallel bars. He has
traditional physical therapy, early intervention, equestrian
therapy, and is "active" in wheelchair basketball.
I would encourage anyone who is new to this world of
disability to never focus on the "dis" part of the word but
to find what their child's abilities are and focus on these.
We are very blessed to currently have no cognitive delays
and actually have
an accelerated vocabulary. We are just beginning our journey
through this new experience as Thomas is 2 1/2 years old but
we are so excited for the possibilities our special son
Tom & Sarah Clark --son Thomas 2 1/2 yo w/ SB, VPshunt, wc,
Greenville, South Carolina