are here to empower you as parents and providers to be the
best that you can be. We can do this through providing you
with information and suggestions from our personal
experiences. We are not medical professionals, but are
essential to our children's future, we are
Here we have tried to list relevant websites
and written material that
may assist you with your child. This
segment will be updated regularly. If you have a question
that is not answered here, please
The information contained in this website is
based on information relevant to U.S. Citizens. We will be
adding information as needed for those families that reside
in other countries, including developing countries.
Larry Appelmann talks about his experiences,
including the past surgeries he has had. He also mentions
his family and how important they are to him. Living with
Spina Bifida: Speaking Out About My Disability contains 13
chapters, including a prologue and a bibliography, which you
normally would not see in an autobiography but he included
one because there were a lot of things related to his
disability that he wanted to include in his autobiography.
*You can purchase this book at both
Amazon.com and Barnesandnoble.com.